Good Morning Everyone,I decided to go back to a "universal" blog for everyone to read for Matthews updates. I know several of you are on Facebook, but not everyone. I update facebook several times daily, but I will continue to update Matthews blog for his current situation.
Recap since Matthew was born Jan. 29, 2007: Matthew was born with Laryngo Trachea Broncho Malasia, deformed epiglottis, no right vocal cord, severe reflux, aspiration and obstructive sleep apnea. Hes had a feeding tube in his stomach since he was 4 months old.
Heres the low down on whats currently happening. Two weeks ago Matthew started a funky little rash on his hands that the doc said was exzema.
I've had Matthew back to the doctor 4 times in the past 2 weeks. He was supposed to have an EGD surgery down in Indianapolis on Good Friday. On wednesday he developed a low grade fever and thursday he was diagnosed with the start of ear infections and sore throat. So we cancelled his surgery for friday morning. I took him back to the docs friday afternoon and his ears already looked better and things were going well.... until 11:30pm and his fever spiked up to 104.6!!! I have never seen a fever so high! Matthew still has his feeding tube in his belly so we brought out his pump and bags and started to get him hydrated with Pedialyte. Hes on an antibiotic, 2 fever reducers, nausea medicine, antihistime for his exzema and his regular meds along with breathing treatments with 2 steroids he inhales. We got his fever down by 1:30am and thought he was on the road to recovery. Buy 4:30am his fever spiked back up to 104.4! Our local doctor said its probably a virus that needs to run its course.
I'm not thrilled that Matthew has to endure these high fevers. Nor are we convinced its "just a virus". Hes never had exzema before and its a sign that something is "not right" within his body. And now the high fevers and wretching (he can't vomit due to the Nissen fundoplication surgery he had at 4 months old) are following the full body exzema break out. We love and respect our local doctor but shes not a specialist and sometimes it needs to go beyond her locally and send Matthew back down to Indianapolis.
Please pray for guidance for Ted and I.
Pray for wisdom for ALL the doctors involved in Matthews care.
And most important pray for healing for Matthew.
This is my prayer for Matthew today:
Oh Lord, my healer, I pray for my son Matthew to be strong and courageous, and not terrified or discouraged with the illness he is facing. Please be with him wherever he goes and provide your strength as he fights daily challenges. Ted and I long for the time when Matthew can fully enjoy good health. I pray for your healing power to touch my child's body. During this time of sickness, I pray that you will strengthen my child's inner spirit. I pray that during his sickness it will make Ryan, Joshua and Kelly more compassionate, caring people, who are quick to pray for others who are sick. I pray for the doctors and ask you to grant them wisdom, understanding, and compassion in treating our precious Matthew. Please help Matthew to sleep peacefully knowing that you are with him and will never forsake him.
In the precious name of Jesus, Amen.
Stay Beautiful Within, Erica
